3 weeks out

We are now 3 weeks out from Annabelle's SDR. She is still moving amazingly well but oh sleep! Sweet sleep why do you evade us!!! I think there has been ONE night since we have been home that she slept through the entire night. She is going to bed at her regular time, staying awake playing in bed until 9 or 10 and then waking up a minimum of two times before getting up for the day around 630a.  Sometimes she's not actually awake (night terror?) but just fussing. Other times she will be tossing and turning and get all wrapped in her blankies. Sometimes she wakes up and just asks to be held. If you ask her if she hurts she says no so it's hard to tell if she is having back spasms or if her hamstring is bugging her (that's still tight). We have her totally off baclofen to get a new baseline but that may be coming back.  We have rehab follow up tomorrow and that is my first question for them!

Home therapy is going well, she likes incorporating her squats and "criss cross applesauce" into her regular play. Outpatient rehab is a whole nother ball of wax. She likes to lay on the floor and refuse to do things for our PTs, OT has been oooook. She's known Annabelle since 4mos old so doesn't take any of her crap. At this point we are working a lot on dorsiflexion (toes toward the nose) since she has more foot drop now where she will drag her toe when she walks. We are also working on her getting up from sitting with lefty leg out front (kind of like a lunge position) she is NOT thrilled with that one... Let the bribery with movie time commence!

Also check out those pinchies! OT thinks she is still where she was right before surgery as far as lefty hand use, I think there's more spontaneous use, but then again I'm mom and I'm biased.

Here's to more and more improvements and strength and cooperation and less fits! Oh to be the parent of a "threenager"