So, in my last post I mentioned how Annabelle was starting to get really tight for stretches and her gait is starting to suffer, BUT botox was just a few weeks away and she responds really well to it (delayed to 5mos interval b/c of our regular rehab doc moving out of state).
Well fast forward to a week before botox and we hear from our therapist that a few of the rehab providers left suddenly so we should call and confirm our botox appt (said therapist is a few towns away from where all this is going down so she is just hearing things from other families). So I call and sure enough the secretary is all like, "yeah we only have 1 provider doing botox now so we will have to reschedule you for NOVEMBER" (now >7mos delayed from our last session). I then ask her, "well this is now less than a week away from our original appt, was anyone going to call me?" and they are all, "yeah, at some point but we hadn't figured out how to handle this yet."
Oh geeze thanks for figuring out your shit first (not really) while we are going along with time off of work and school and special therapy appt's set up for casting afterwards... great f*%king customer service! And as it turns out through the grapevine other families were NOT called. They showed up at the hospital and there was no doc there to do the injections!
In any case, we got Annabelle into a private clinic (We *think* is in-network for our insurance) and got a new botox appt moved up to early Oct with them. It's about a month sooner than what the hospital could do and I'll take it. Even with putting Elmo on the Ipod Annabelle has been SCREAMING and crying during stretches for the past few weeks, saying it hurts and she has never done that before. Jim and I can absolutely tell she keeps getting tighter and tighter as well. It absolutely breaks my heart!
As a result of all of this, there is going to be one hell of a letter sent to the clinic manager about how incredibly poorly the whole situation was handled. I'm also miffed that the providers we are now going to in the private clinic are the ones who suddenly up and left the hospital, leaving the families in a bit of a tizzy. It does kind of kill me to given them business but at this point it matters more that Annabelle gets the damn injections....
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| On a much happier and less frustrating note, this is GB petting the piggy (and then telling her which way to go) at the local heritage park. So stinkin' cute! |
